Describing the nationwide crisis that surrounds end-of-life care, the authors contend that informal caregiving by relatives and close friends is an enormous and too-often invisible resource that deserves close and public attention. By incorporating not only the ill person's but also the family's perspective, they portray the nine participants in the contexts of their daily lives and relationships rather than simply as patients. Addressing such issues as palliative care, quality of life, financial hardship, grief and loss, and communications with medical personnel, the authors identify how families, professionals, and communities can respond to the challenges of terminal illness and the need to confront life's end.
Jana Staton is a researcher with the Missoula Demonstration Project, a community-wide effort in Missoula, Montana to study and transform end-of-life experience and care. She is author of Listening to Families.
Roger Shuy is Distinguished Research Professor of Linguistics Emeritus at Georgetown University. He is author of Bureaucratic Language of Government and Business.
Ira Byock, MD, is the cofounder of and principal investigator for the Missoula Demonstration Project and is a research professor in the department of philosophy at the University of Montana. He is author of Dying Well: Peace and Possibilities at the End of Life.